TKO Strong
  • Homepage
  • Stories
  • Patient & Family Resources
  • Research
  • Donate
  • Sponsor
  • Upcoming Events
  • Press
  • Past Events
  • Supporters
  • Contact Us
Click here for MVID Info

Together we will knock out microvillus inclusion disease


Donate
Picture

mission 

vision

The TKO Strong Foundation is a non-profit organization dedicated to enhancing the lives of patients diagnosed with Microvillus Inclusion Disease. We are the only national non-profit organization that is committed to supporting families, promoting MVID awareness and raising funds for cutting edge research to find more effective treatment options and ultimately a cure.
Our vision is the development of optimal cutting edge treatment options to greatly improve quality of life for every baby, child & young adult diagnosed with MVID. 

About Us

  Tom and Melissa Onorato founded the TKO Strong Foundation, after their oldest son Thomas Kevin Onorato was born in 2013.  Thomas was diagnosed with Microvillus Inclusion Disease.  Onset of MVID symptoms occur in infancy, typically within days of birth. This devastating genetic disease results in intestinal failure.  Thomas' body is unable to absorb nutrition and stay hydrated due to constant fluid loss. This condition is fatal if not treated aggressively.  MVID patients are "fed" intravenously, using parenteral nutrition, which is currently the only treatment option.  The rarity of this disease, like other orphan diseases, is the cause for minimal research.  There is no cure for Microvillus Inclusion Disease.  After extensive research and speaking with other families and patients, it became evident to Thomas' parents that they needed to take matters into their own hands if they wanted to change the course of this understudied disease.  Together, with devoted family, friends, and the community they have taken the initiative to raise money to support Microvillus Inclusion Disease research at Boston Children's Hospital. Their hope is to bridge the gap between patients, researchers and physicians to find safe and effective treatment options and ultimately a cure.

Co-Founders

Board of Directors

MELISSA A. ONORATO
​THOMAS ONORATO

Officers

PRESIDENT:   MARK ONORATO
VICE-PRESIDENT:  CRAIG SCHMIDT
SECRETARY:  RICHARD GUEZ
TREASURER:  THOMAS ONORATO
ALEXIS ONORATO
ALISON SCHWENZER
ANTHONY TULLO
CRAIG SCHMIDT
JAMES FISCHMAN
MARK ONORATO
MELISSA A. ONORATO
MICHAEL FITZGERALD
REGINA PETERS
​RICHARD GUEZ
SALVATORE VAGLICA
THOMAS ONORATO
WILLIAM PETERS

Honorary Members


CAITY STOLLE
​CHRISTINE IADEVAIO
HANNAH MONTENEGRO
JOSEPH KREISBERG
KEVIN KAVANAGH
KIMBERLY ONORATO
KINN CHAN de VELARDE, MS, MBA

MAJOR CHARLES KILBRIDE
​MICHAEL W. KAVANAGH
MICHAEL ONORATO, JR
VINCENT GROSSO
VINCENT MONTENEGRO
​WILLIAM M. PETERS

TKO STRONG FOUNDATION, INC. 
P.O. BOX 245
Malverne, NY 11565
516-887-2787

We are a non-profit article 501(c)(3) corporation
EIN 472113249
Established 2014

#Micro-Villus Inclusion Disease #MVID #MID #IntestinalFailure #Research #RareDisease #RareDiseaseDay #TKO #TKOStrong #TKOStrongFoundation #Children #MY05b #TPN #TotalParenteralNutrition #Support #Lipids #2020 #Nonprofit #Organization
Proudly powered by Weebly
  • Homepage
  • Stories
  • Patient & Family Resources
  • Research
  • Donate
  • Sponsor
  • Upcoming Events
  • Press
  • Past Events
  • Supporters
  • Contact Us