Social media has made it possible for individuals and families, from all over the world, living with a rare disease, to come together. Fortunately, for families affected by Microvillus Inclusion Disease, such an online community exists to educate and provide support. The MID/MVID Family Support Facebook Group is a platform that empowers its members with invaluable knowledge and provides an opportunity to share information and lend support. The collaboration taking place encourages members to advocate for themselves or their child as they seek medical treatment, making them an essential part of the medical team.
Families affected by Microvillus Inclusion Disease looking to connect with other families can join the MID/MVID Family Support Group by clicking the button below.